NOTE: Sorry, this is a repost but had to do a site restore because I did something to my site and POOF! My site wouldn’t respond.
It’s been a busy week—tiring. This week I had to make a trip to Winston-Salem with two of the girls for checkups with their geneticist. Now, I know you’re sitting there probably thinking that a two-hour drive isn’t that far. Try making a two-hour drive with a three-year-old and a six-year-old and you’ll change your tune. We have to leave an hour early because you never know if a child will have to use the potty multiple times or get carsick.
Anyway, I apologize that this week’s post is a bit long but I have friends and family that read this blog. Well, and honestly, I’m making friends in the blogging community as well that have extended well wishes to us and appreciate updates. Anyway, Kahlan (age six) is doing fairly well. As some of you know, they have been diagnosed with a condition called Ehlers-Danlos Syndrome. She has some pain but it is very well-managed with essential oils and heat or ice. She hasn’t had any hives recently and she’s overall doing well.
Arie (age three) has always been more severe. The nights spent in pain have decreased. However, her nights when she still has pain has worsened. Her gait hasn’t improved much. Despite therapy, orthotics, rotation straps, and age—which orthopedists insisted would bring the most change. The orthopedist had stated that the rotation came solely from her hips and that things would improve with age.
Unfortunately, the geneticist stated that the rotation is not only coming from the hips but also from her feet. Apparently, she has a foot deformity called Metatarsus Adductus. Metatarsus Adductus causes the front part of the foot to turn inwards towards the big toe. I’ll share this image of her cute little feet to show what I mean.
I know this post has been long and I apologize. I just want people to keep us in their thoughts. Pray that the doctors have wisdom and that I keep doing my best that I can to help my daughter.
I don’t yet know what the plan is or what we’ll be doing for this. At her age, I don’t even know if there is much that can be done. We’ll be talking to her therapists and of course keeping up with her other specialists.
If anyone has experience with this and has advice or even if you just want to reach and connect because you or your children are dealing with the same—feel free to comment below! You are not alone.
Last but not least, I want to wish all the dads that may be reading this a very Happy Father’s Day! I hope your day has been extra special!
New on the Blog this Week
- [11 Jun] Weekly Wrap Up: Week 23
- [11 Jun] The Cramm Award
- [12 Jun] Goodreads Monday
- [13 Jun] Amish Brides by Jennifer Beckstrand, Amy Lillard ★★
- [14 Jun] An Awakened Heart (Orphan Train, #0.5) by Jody Hedlund ★★★★★
- [15 Jun] Shadow of the Storm by Connilyn Cossette ★★★★★
- [16 Jun] 2017 Christmas in July Reading Challenge
- [17 Jun] Devoted by Marjorie Jackson ★★★★
- 20 Jun: An Amish Summer by Shelley Shepard Gray, Amy Clipston, Kathleen Fuller, Kelly Irvin
- 21 Jun: With You Always by Jody Hedlund
- 22 Jun: The Farmers’ Market Mishap (Lopsided Christmas Cake #2) by Wanda E. Brunstetter, Jean Brunstetter
- 27 Jun: The Girl Who Could See by Kara Swanson
Goals for this Week
I’m repeating some goals—again. Some of these have been repeated for two weeks now. It’s not that I haven’t read—I have. I have a blog and review schedule because of the amount of street team and authors I am review for. So, I have a tentative plan on Sunday but if a book comes in that is due earlier in the month than the one I had planned, I make changes. Given the amount of review books I currently read about a month in advance. So, anyway, have no fear if you noticed me “slacking” I just switched my reading order.